Micah Status Site

Micah Status Site

Yesterday around 11:00 a.m. Micah had surgery to insert the g-tube (feeding tube) into his stomach. It seems like the procedure went well. He wasn’t fed at all yesterday and won’t get his first feeding until around 8:00 a.m. today. After his feeding, we will have a better idea how if everything is working okay. Monday, the afternoon after the last update, the doctor’s felt they were going to need to definitely do the fundu surgery to keep Micah from throwing up. That is where they take part of the stomach and wrap it around the esophagus so food can go down but not back up again. The doctors were feeling that the reflux was probably the cause of Micah’s frequent de-sats. The following day, though, they tried changing his feeding schedule. They gave him less milk more frequently and it seems as if that really helped reduce his reflux and reduce his de-sats. So, late Tuesday, the doctors decided to hold off on the fundu surgery and just do the one to insert the g-tube. On Monday and Tuesday, Micah had a therapy session for his body and to help him learn to drink from a bottle. Monday’s session was not good. He had a different therapist who did things differently than Micah was used to. Micah did not do well at all and was very unhappy. Tuesday, when his regular (and favorite) therapist came, he did very well and took in 10 cc’s of milk through a bottle. We love this therapist (and we believe Micah does, too!) and pray that somehow we can get her to help with Micah’s therapy when he goes home.

Yesterday afternoon, when I left Micah, he was sleeping but he felt very hot. I asked the nurse if he was running a fever and she said that his temperature had been spiking and then going down. She had given him Tylenol. They put Micah on oxygen for the night to help him since he was sedated. This will help him keep is oxygen saturation levels up.

As we sit back and reflect on what God has been doing in Micah, we are in awe of His goodness.

We asked for all of you to pray that Micah’s throat muscles and swallowing reflexes would strengthen so he could clear his own secretions and would not need a trach and, so far, the doctor’s aren’t even talking about it anymore. THANK YOU, LORD!

We asked God to strengthen Micah’s sucking and swallowing reflexes so he could drink from a bottle. Micah is beginning to suck and drink very small amounts and we are believing it won’t be too long before he will be able to drink an entire feeding from a bottle. GOD, YOU ARE SO GOOD!!!

We asked God to stop his seizures. He hasn’t had a seizure since Sept. 12th and has been COMPLETELY off all seizure medicines for more than a week now! Perhaps God has already healed that part of his brain! YOU ARE THE GREAT HEALER, LORD!

We asked God to help Micah breath on his own. On Sept. 9^th, Micah came off the ventilator. On Sept. 17^th, the oxygen mask came off. On Sept. 20^th, the little nose tube that gives a little oxygen came off. And since then, he has been breathing only room air (with the exception of a little oxygen right now just after his surgery). THANK YOU, LORD, FOR BREATHING YOUR LIFE INTO MICAH!

Micah now cries with nearly the volume and intensity of a healthy newborn. All of his organs are working well…and he just gets more beautiful every day that passes!

Oh, another great thing to note is that Micah LOVES his praise music! I put a cd player in his room almost 2 weeks ago and it plays sweet, beautiful praise music 24/7. Every now and then, a nurse will turn it off to move things around in the room and once in a while they forget to turn it back on. Yesterday the nurse told us that the music was off when she came in for her shift and when she turned it back on, Micah immediately calmed down. She said that he really likes it!!! Yayy!!!! Our little worshipper is praising Jesus while he’s being healed!!!!!!!! (Just a note: Stephanie says that the nurses come in and out of his room and some of them have begun to hum or sing the songs that play on the cd. They have told her that “they just can’t get that song out of my head”! I can think of nothing more wonderful to have “stuck in the head” than words that give honor and glory and praise to the One True Physician…our King…our Lord and Savior….Jesus!

PLEASE KEEP UP YOUR WONDERFUL PRAYER BATTLE FOR MICAH.

PRAY THAT MICAH RECOVERS PERFECTLY FROM THE PROCEDURE TO INSERT THE FEEDING TUBE.

PLEASE CONTINUE TO PRAY THAT MICAH CONTINUES TO SUCK WITH STRENGTH SO HE CAN FULLY FEED ON HIS OWN AND THAT GOD WOULD RESTORE HIS MUSCLE STRENGTH & TONE IN HIS THROAT.

PRAY THAT HE CONTINUES TO CLEAR HIS OWN SECRETIONS THROUGH SWALLOWING AND COUGHING.

PRAY THAT MICAH WILL CONTINUE TO BREATHE COMPLETELY ON HIS OWN & THAT HIS LUNGS CONTINUE TO STRENGTHEN.

PRAY FOR COMPLETE HEALING OF MICAH’S BODY & MUSCLES….PRAY THAT GOD WOULD HEAL HIS SPACTICITY & THAT MICAH WOULD BEGIN TO HAVE NORMAL, HEALTHY REFLEXES IN HIS HANDS, ARMS, LEGS AND FEET.

PRAY FOR PROTECTION OVER MICAH AND PROTECTION AGAINST ANY ILLNESSES OR INFECTIONS.

PRAY FOR COMPLETE HEALING & RESTORATION OF HIS SIGHT.

THIS IS MOST IMPORTANT TO PRAY FOR – COMPLETE HEALING AND RESTORATION OF MICAH’S BRAIN.

Thank you again for walking and warring with us in the amazing journey of Micah’s healing. God is so good and I will forever spend my life thanking and praising Him for His goodness, mercy and love!

Grandma Teri

Micah Status Site

Micah Status Site

Update #12

MICAH IS STILL BREATHING ON HIS OWN –

Micah is still doing fairly well breathing on his own. Since last Wednesday evening, the tube in his nose for oxygen has been removed and he is completely breathing room air. Over the weekend, he has been having “de-sats” up to 3 times an hour. De-sats are when his oxygen levels go down to an undesirable mark. Micah’s body is able to correct them without intervention (usually within a minute) so that is good. It would be better that he has NO de-sats at all. Micah seems to have developed a pretty bad case of reflux. He throws up sometimes 3 times an hour. His vitals do not really change (except for his oxygen saturation levels – temporarily). The gastro doctor will come in today to discuss this situation and possibly make a decision whether or not to do this procedure in his stomach that prevents him from throwing up – I can’t remember what it is called – fundi or something. Anyway, it is like folding the top of the stomach. If done, Micah will never be able to throw up again. They don’t want to do anything that is not necessary so we will not know what their opinion is until later. Micah is scheduled for surgery on Wednesday for the insertion of either a G-tube or a plug for feeding. They may or may not do that on Wednesday, but the surgery is scheduled just in case. Micah’s therapist did not come over the weekend so his therapy is continuing today. We are praying that he continues to suck the little bottle of milk and are hoping that his sucking has strengthened. Micah has been much fussier than usual. He cries a lot. (He now has a pretty normal & loud sounding cry!!!) We don’t know if it is because he is uncomfortable because of the reflux or if it is because he is more aware than he has been in the past. Micah’s has been on phenobarbitol and dylantin for seizures for so long. He hasn’t had any doses of any seizure medicines for quite some time – perhaps a week? It is wonderful that he hasn’t had any seizures since then. Maybe Micah is more fussy because he can “feel” now that he isn’t so drugged. The neurologist said that they will put Micah on a maintenance seizure medication if he needs it but won’t give him any more meds for them until he has a seizure. It is possible that he may not have seizures anymore. That would be a miracle!!!! Perhaps the Lord has already healed that part of Micah’s brain!!!

There are some issues with the former hospital/insurance company that may come into play. Apparently the case workers at both hospitals were talking in one of their meetings and the former hospital’s case worker said that director of their hospital said that “the plans have changed and we want Micah transferred back to our facility”. I believe that was last Thursday or Friday. While at this time, no formal request has been received by Chris and Stephanie, we would like for all of you to please pray that they would leave Micah alone. We do not want him transferred back. CHOC is the best place for him. They are working a wonderful therapy plan to get him ready to go home. They are giving Micah every chance to do well on his own without any medical interventions such as trach, etc. They have been wonderful at CHOC.

Here are the current prayer requests for Micah. Please keep praying. God is hearing our prayers.

PRAY FOR A COMPLETE HEALING & RESTORATION OF MICAH’S BRAIN & BODY.

PRAY FOR STRENGTHING IN HIS BREATHING, GAGGING, SUCKING & ALL INVOLUNTARY RESPONSES AND REFLEXES.

PRAY FOR MICAH TO BE ABLE TO TAKE IN MORE FOOD BY MOUTH AND THAT HIS SUCTION AND SWALLOWING STRENGTH INCREASES IMMEDIATELY.

PRAY FOR MORE STRENGTH & STABILITY IN MICAH’S BREATHING AND OXYGEN SATURATIONS. PRAY THAT THEY REMAIN ABOVE 90% CONSISTENTLY.

PRAY FOR HEALING OF MICAH’S REFLUX AND THAT HE STOPS THROWING UP HIS FOOD.

PRAY FOR HIS MUSCLES TO STRENGTHEN THROUGHOUT HIS BODY & FOR ALL SPASTICITY TO BE GONE. HIS LEGS ARE VERY SPASTIC AND STIFF AS ARE HIS THUMBS. ALL OF HIS MUSCLES NEED HEALING.

CONTINUE TO PRAY THAT MICAH WILL NOT NEED A TRACHEOTOMY.

PRAY THAT MICAH CONTINUES TO GET HIS HEATHCARE AT CHOC AND THAT THE LORD WILL DO WHATEVER HE NEEDS TO DO TO MAKE THIS HAPPEN.

PRAY FOR PROTECTION OVER BABY MICAH & FOR THE PEACE OF THE LORD TO REST ON HIM CONTINUALLY.

Please don’t stop praying for our precious Micah. We are still desperately seeking God’s complete healing of this child.

With thankfulness in our hearts for your prayers and for what God has already done,

Gary and Teri Stache

Micah Status Site

UPDATE ON BABY MICAH - #11

THIS IS REALLY A GOOD ONE!!!!!

Yesterday (Thursday), during Micah’s second therapy session, Micah took 9 cc’s of breast milk from a bottle! And after he finished, the therapist told Stephanie that if he coughed, it would be a good thing because it means he is clearing out any fluid that didn’t go down right. Then guess what Micah did right after the therapist said that??? HE COUGHED!!!

We are so thrilled! I am actually dizzy with joy!

And then, a few hours after his feeding, the gastroenterologist came in with the intent of talking about setting up the procedure to insert the feeding tube. He jokingly said that he had heard that we were “force feeding” Micah. He had a big smile on his face. He said that he was coming in to schedule the procedure and explain everything to us but he said he would just do that another day, when (and if) that day comes. He said he would like to give Micah a little more time to progress and see how he does on his own!!!

OKAY, SO YET ONE MORE MIRACLE IN THE MAKING!!!!!

PLEASE CONTINUE TO PRAY THAT MICAH CONTINUES TO SUCK WITH STRENGTH SO HE CAN FEED ON HIS OWN AND THAT GOD WOULD RESTORE HIS MUSCLE STRENGTH & TONE IN HIS THROAT.

PRAY THAT HE CONTINUES TO CLEAR HIS OWN SECRETIONS THROUGH SWALLOWING AND COUGHING.

PRAY THAT HE WILL NOT NEED A TRACHEOTOMY OR A FEEDING TUBE.

PRAY THAT MICAH WILL CONTINUE TO BREATHE COMPLETELY ON HIS OWN WITHOUT THE AID OF ADDITIONAL OXYGEN & THAT HIS LUNGS CONTINUE TO STRENGTHEN.

God seems to be restoring Micah’s strength in some of his muscles. His legs are very spastic still as are his little hands.

PRAY FOR COMPLETE HEALING OF MICAH’S BODY & MUSCLES.

We are convinced that God will do a restoration in little Micah’s brain.

THIS IS MOST IMPORTANT TO PRAY FOR – COMPLETE HEALING AND RESTORATION OF MICAH’S BRAIN.

And, PRAY FOR A MIRACLE IN THE HEARTS OF THE DOCTORS & NURSES WHO DON’T BELIEVE IN A GOD WHO COULD AND WOULD DO SUCH WONDERFUL THINGS! PRAY THAT THEY WILL SEE THE HAND OF GOD IN MICAH’S LIFE & THAT THEIR HEARTS WOULD TURN TO THE “ONE TRUE PHYSICIAN”& GIVE HIM ALL THE GLORY FOR WHAT HE HAS DONE!

I realize we just updated you yesterday but I could not wait to share this GREAT news! PLEASE KEEP PRAYING FOR MICAH! God is continuing to answer our prayers.

With so much faith, hope and trust in our Lord –

Grandma Teri